September 13. We organized the "Communication with decision makers" Conference - as this is a key topic for supporting patients with complex diseases, such as rare diseases and rare cancers. This permanent link can lead to mobilizing people around a common cause and creating support networks for patients with rare diseases and rare cancers. We had as guests: Sorin Gradinaru, vice-president of the Copilul Meu Inima Mea Association and member of the COPAC CD, Ligia Marincaș, director of the Sălaj Public Health Directorate and Prof. Dr. Ioana Streață from the University of Medicine and Pharmacy Craiova. The event was moderated by Dorica Dan and organized by the National Alliance for Rare Diseases Romania and the Romanian Association of Rare Cancers with the support of Sanofi, Novartis, Bristol Myers Squibb, Janssen and UCB.
The conference is part of the ShareExperience 2023 project.