Managementul de caz
Submitted by admindmb on Wed, 04/08/2021 - 13:02
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Materiale Boli Rare
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Asistenta medicala comunitara
Submitted by admindmb on Wed, 04/08/2021 - 13:01tip:Materiale Boli Rare -
Rare Disease Day 2021 - NoRo Center
Submitted by admindmb on Tue, 23/03/2021 - 13:10Rare Disease Day 2021 - NoRo Center
This material is realized by Romanian National Alliance for Rare Diseases for Rare Diseases Day 2021 with the support of:
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Ziua Bolilor Rare 2021 - Centrul NoRo
Submitted by admindmb on Wed, 17/03/2021 - 15:09Ziua Bolilor Rare 2021 - Centrul NoRo
Acest material video a fost realizat în campania de Ziua Bolilor Rare 2021 cu sprijinul:
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Despre boala Pompe
Submitted by admindmb on Wed, 10/03/2021 - 08:45 -
Deficitul de L-AMINOACID-AROMATIC DECARBOXILAZĂ (AADC) - Diana Bârcă
Submitted by admindmb on Wed, 03/03/2021 - 09:15Deficitul de L-AMINOACID-AROMATIC DECARBOXILAZĂ (AADC) - Diana Bârcă
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zoom_6.mp432.22 MB tip:Materiale Boli Rare -
Material hemofilie - testimonial pacient
Submitted by admindmb on Tue, 02/03/2021 - 15:44Material hemofilie - testimonial pacient
Attachment Size Montaj Testimonial pacient.mp4188.1 MB tip:Materiale Boli Rare -
Tratamente actuale in boli rare - Amiotrofia spinala
Submitted by admindmb on Tue, 02/03/2021 - 15:36O prezentare a Dr. Ioana Minciu, medic neurologie pediatica in Clinica NP Spital Obregia cu titlul Tratamente actuale in boli rare - respectiv Amiotrofia spinala, posibilități actuale de tratament.
Attachment Size Posibilitati actuale de tratament in AMS.mp441.53 MB tip:Materiale Boli Rare -
The power of genetic testing_Kirsty Wells
Submitted by admindmb on Tue, 02/03/2021 - 15:14Kirsty Wells, genetician senior vorbește pentru Ziua Bolilor Rare 2021 din partea Blueprint Genetics subliniind importanța testării genetice
Attachment Size The power of genetic testing_Kirsty Wells.mp4337.89 MB tip:Materiale Boli Rare -
Mesajul MS Margareta Ziua Bolilor Rare 2021
Submitted by admindmb on Tue, 02/03/2021 - 14:45Mesajul MS Margareta Ziua Bolilor Rare 2021 subtitrat RO
Attachment Size Mesajul MS Margareta Ziua Bolilor Rare 2021 subtitrat RO.mp4247.88 MB tip:Materiale ZBR
