I sit alone by the burning fire
And wait for someone to appear.
Flames whipped me, I inquire,
They told me STOP, but my thoughts
Again in sweet dreams I retire.
I see myself, a lively, laughing CHILD
Happy to RUN and play,
But my GLASS BONES hurt me wild,
Killing my joy to say:
I wish to WALK or maybe even FLY.
A leaf fell at my window
The last of the oak tree.
I wonder, what were its thoughts, saying FAREWELL
To the EMPTY tree… that it’s in VAIN
To LIVE and then in shades remain?
No, in life NOTHING is at chance
In THIS world full of SIN.
Even if GLASS BONES hurt,
With CONFIDENCE I look ahead and maybe
A guardian angel will appear.
I shall wait for you, child, every day
To watch the fire burning.
To watch you PLAY, so that you may
Be the CHILDHOOD that I miss
And the SUN, shining in the morning
Exercise
Imagine that you could transform the dreams of the child into reality. What would happen?
Did you know…
Osteogeneza imperfecta is also known as brittle bones disease or Lobstein disease. Bones of the person with osteogeneza imperfecta are particularly fragile because of a lack of calcium. Also, they are born with defective connective tissue, or without the ability to make it; A child with osteogeneză imperfecta should be protected carefully from accidents, which may result in fractures. And the child must learn to take care of himself or herself and should know that they is capable of that. With adaptive equipment such as crutches, wheelchairs, splints, grabbing arms, and/or modifications to the home many individuals with osteogeneză imperfecta can obtain a significant degree of autonomy.
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